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Hearts & MindsSM - Information for ChangeSM
Facial Disfigurement
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 There
is no need to spend a lifetime in isolation, help is available
About Face
P.O. Box 969
Batavia, IL 60510
Phone: 1-888-486-1209
Fax: 1-630-761-2985
E-Mail: info@aboutfaceusa.org
Website: www.aboutfaceusa.org
"AboutFace USA is a non-profit organization dedicated to
providing information, emotional support, and educational programs to individuals who have
a facial disfigurement, and to their families. Our goal is to assist all persons
with facial differences to have a positive self-image and self-esteem so that they can
participate fully in their communities. We welcome and include people whose facial
differences are present at birth, or develop as a result of illness or trauma. AboutFace does not provide information on treatment options or medical referrals.
We offer an opportunity to be connected and understood."
AboutFace USA provides information and support to
persons with facial disfigurements and their families. It has networks to
participate in programs of public education and awareness. Website is extremely
informative and easy to navigate. -SAK
This site has personal stories of inspiration, book reviews, and
conferences/meetings that you may attend. The site also has a newsletter and peer network,
so you may meet someone with a similar problem around your age. -OCC
Children's
Craniofacial Association
NATIONAL OFFICE
13140 Coit Road
Suite 307
Dallas, TX 75240
Phone: 1-800-535-3643 or 1-214-570-9099
E-Mail: contactCCA@ccakids.com
Website: www.childrenscraniofacial.com/
"Children's Craniofacial Association is a national, nonprofit
organization, headquartered in Dallas, Texas, dedicated to improving the quality of life
for people with facial differences and their families. Nationally and internationally, CCA
addresses the medical, financial, psychosocial, emotional, and educational concerns
relating to craniofacial conditions. CCA's mission is to empower and give hope to facially
disfigured children and their families."
The Children's Craniofacial Association offers information on
craniofacial disorders in children. The site is very well displayed. -PT
This site has a lot of information about how to help, and how to get
help. It has information about financial help, clinics, and general information. The site
also has a newsletter and a list of links that can be very helpful. It is easy to
navigate, very helpful, and all-around very impressive. -OCC
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FACES: The National
Association for the Craniofacially Handicapped
Phone: 1-800-332-2373
Assists children and adults with craniofacial disorders resulting from
disease, accident or birth. Financial assistance, referrals to support groups and
treatment centers. Newsletter.
Forward Face
317 East 34th Street
Suite 901A
New York, NY 10016
Phone: 1-212-684-5860
Fax: 1-212-684-5864
E-Mail: linda@forwardface.org
Website: www.forwardface.org
"Forward Face's mission is to help children with craniofacial
conditions, and their families, find immediate support that helps empower them to
successfully manage the craniofacial condition. Knowing the overwhelming demands
that craniofacial conditions place on the patient as well as the family, Forward Face
provides comprehensive services: educational support, advocacy, networking, community
organizing and other forms of assistance, when necessary. Forward Face strongly
advocates educating our members and the public in the quest for understanding and
acceptance. Our organization is totally committed to providing the necessary
resources to enable every person to attain the highest quality of life."
Website offers membership that includes quarterly newsletters and
opportunities to network with other families. -SAK
This site has information about different types of circumstances of
facial disfigurement. It also has information about upcoming events related to the topic, as well as literature and links to other websites. -OCC
Top of the Page
Let's Face It
P.O. Box 29972
Bellingham, WA 98228
Phone: 1-360-676-7325
E-Mail: letsfaceit@faceit.org
Website: www.faceit.org
"Let's Face It USA is a nonprofit network that links
people with facial disfigurement and all who care for them to resources that can enrich
their lives."
Contains crucial information on the many aspects of facial disfigurement
as well as resources for parents and educators. -SAK
The site also has information about surgery, recovery
and different conditions. The site gives out current news and updates. -OCC
Changing Faces
1&2 Junction Mews
London W2 1PN
Phone: 1
(0) 845 4500 275
Fax: 1 (0) 845 4500 276
Email: info@changingfaces.co.uk
Website:
www.changingfaces.co.uk/default.html
"...primary
focus is on disfigurements affecting the face, much of our work has relevance to
disfigurements of other parts of the body, and we are happy to help with any concerns
about disfigurement and disfiguring conditions. We address disfigurements of any origin,
whether present at birth or acquired later in life."
This site has a lot of information and I like it very much. It talks about
parents, support groups, teachers, employers, health care, and more. It also gives
information about treatment -- different types of treatment. -OCC
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Copyrights: Entire website © 1997 - 2007 by Hearts and Minds
Network, Inc., artwork © 2006 by Man Gurung. This web page -
http://www.heartsandminds.org/self/links/facialdisfigurement.htm - latest
text changes April 27, 2006, latest update Aug 10, 2006 |
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